"A wondrous, hopeful, heart-breaking witness to one of the darkest journeys imaginable... This will be one of those rare books that people re-read, think about, and encourage others to read." --Bruce D. Perry, M.D., Ph.D, author, with Oprah Winfrey, of What Happened to You

"I love this book. I absolutely could not put it down. It is beautifully written and cuts to the very heart of life and love: The story of Havi's short, beautiful life and early death from Tay-Sachs is harrowing, heartbreaking, uplifting, profound and sometimes funny. Havi will charm the socks off you."--Anne Lamott

Life is unfolding as planned for Myra Sack and her husband Matt until their beautiful year-old daughter Havi is diagnosed with Tay-Sachs, a fatal neurodegenerative disease, and given only a year to live. Myra and Matt decide to celebrate Havi's short life and vow to show her as much of the world as they can, surrounded by friends and family who relocate to be in Havi's orbit. Tapping their Judaism, they transform Friday night Shabbats into birthday parties--"Shabbirthdays"--to replace the birthdays Havi will never have.

2024 WINNER Autobiography/Memoir Best Book Awards

"A wondrous, hopeful, heart-breaking witness to one of the darkest journeys imaginable... This will be one of those rare books that people re-read, think about, and encourage others to read." --Bruce D. Perry, M.D., Ph.D, author, with Oprah Winfrey, of What Happened to You

"I love this book. I absolutely could not put it down. It is beautifully written and cuts to the very heart of life and love: The story of Havi's short, beautiful life and early death from Tay-Sachs is harrowing, heartbreaking, uplifting, profound and sometimes funny. Havi will charm the socks off you."--Anne Lamott

Life is unfolding as planned for Myra Sack and her husband Matt until their beautiful year-old daughter Havi is diagnosed with Tay-Sachs, a fatal neurodegenerative disease, and given only a year to live. Myra and Matt decide to celebrate Havi's short life and vow to show her as much of the world as they can, surrounded by friends and family who relocate to be in Havi's orbit. Tapping their Judaism, they transform Friday night Shabbats into birthday parties--"Shabbirthdays"--to replace the birthdays Havi will never have.